RSD Article # 1
Mutilating
Procedures
(Mutilation Of An RSD Patient)
February 10, 1997
Dear Fellow RSD'ers,
I would like to share with you this e-mail letter that I received from a fellow RSD
patient on May 26, 1993 this e-mail letter was sent to me on the Prodigy network.
The reason I want to share this letter with you, is to show you how much mutilation occurs
during the course of treating an RSD patient. You will see how many unnecessary procedures
were done to this RSD patient.
It amazes me every time I read this letter that there are still doctors out there
mutilating RSD patients with these unnecessary procedures, like (SCS) Spinal Cord
Stimulators and Sympathectomy.
The sad thing about reading this letter is that this doctor just did not do one of these
procedures, he did many of these procedures more than once and as many as four times.
These are the destructive types of mutilating
procedures that cause more pain and spread of RSD. This is the type
of destruction that has to stop!
Thank you for taking the time to read this letter.
Sincerely,
Eric
Mutilation Of
An RSD Patient
The message was received as follows:
READ A MESSAGE
From:
To: TFCK54A
Subject: RSD AND FRIENDS
Sent on: 05/26 at 12:04 PM 05/26/93
HI, ERIC THANKS FOR WRITING BACK SO SOON! MY RSD STARTED
FROM A TRIGGER FINGER RELEASE IN MY LEFT HAND WITH IN 1 MO.
HAD SPREAD TO MY SHOULDER THEN JUST KEPT SPREADING. NOW RSD
IS IN MY CHEST, BOTH ARMS, HANDS, SHOULDERS, VOICE BOX,
HEAD, HIPS, LEGS, FEET AND MY EYES ARE BEING AFFECTED BY
RSD. THIS ALL HAPPENED IN 3 YEARS. WITH 50+ BLOCKS, 30 +
SURGERIES, INCLUDING 4 UPPER DORSAL SYMPATHECTOMIES, 3
CERVICAL CATHETERS, 2 PERIPHERAL NERVE STIMS, 2 DORSAL
COLUMN STIMS. SO I HAVE BEEN THRU THE MILL. MY RSD SPREADS
EVERY TIME THEY OPERATED ON MY BODY. THE DOCTOR DOES SAY THAT
IT IS NOW CENTRALLY LOCATED IN MY SPINE AND THAT THE
SYMPATHETICS HAVE TAKEN OVER FOR MY NERVOUS SYSTEM. MAKE ANY
SENSE TO YOU? SINCE MY DOCTOR IS IN DENVER, I DO NOT REALLY
KNOW ANY ONE PERSON WHO HAS RSD HERE BUT HAVE (SINCE BEING
DIAGNOSED) HEARD OF A LOT OF PEOPLE WITH IT. I WAS THE FIRST
MAJOR CASE IN OUR TOWN. DOCTORS HAD NEVER TREATED IT HERE
BEFORE, AFTER ME THEY STARTED TO LOOK AT IT AS A DISEASE AND
THEN DIAGNOSE IT FROM THERE. I HAVE THOUGHT OF DOING A
NEWSPAPER ARTICLE, BUT I AM NOT SURE? I'LL SEE WHAT I CAN
DO. THANKS AGAIN FOR YOUR HELP. IF YOU'RE SURE I WON'T SEND
YOU REIMBURSEMENT.
BYE!
The author of this e-mail wishes to withhold
their name for personal reasons.
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